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  • #1

    Repeat RPLND

    I have just been to see my local oncologist about my recurrence in the lymph nodes. He has spoken to Dr. Einhorn who has re-affirmed how unusual my case is. He however, has recommended I have a second RPLND rather than salvage chemo to see how much cancer is left and if needed chemo after.

    My local urologist has suggested the the best person to do this is Dr. Sheinfeld, but it should be done within a month. Does anybody know how to get in contact with Dr. Sheinfeld, so I can at least see if I can get in his schedule?

    Thanks in Advance.

    Dave
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  • #2
    Dave,

    I have his number: 646-422-4311.

    I really TRUST him, he will be able to help you. GodSpeed for your quick recovery.

    Margaret
    Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
    Current DVT
    Current testosterone replacement therapy, Testim.

    "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum

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    • #3
      Originally posted by David1969
      Does anybody know how to get in contact with Dr. Sheinfeld, so I can at least see if I can get in his schedule?
      Dave, you can find Dr. Sheinfeld's information at this link.
      Scott, [email protected]
      right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

      Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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      • #4
        Thanks Guys. I finally feel I am making some progress on this.

        Comment

        • #5
          David, your post gives me relief so I can imagine how you feel! Your case is so unusual. You will be in the best of hands. Dianne
          Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
          Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma

          Comment

          • #6
            You will be in good hands, and you have all our support and well wishes. Keep us posted on what Dr S advises!
            Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

            Comment

            • #7
              Originally posted by David1969
              I have just been to see my local oncologist about my recurrence in the lymph nodes. He has spoken to Dr. Einhorn who has re-affirmed how unusual my case is. He however, has recommended I have a second RPLND rather than salvage chemo to see how much cancer is left and if needed chemo after.

              My local urologist has suggested the the best person to do this is Dr. Sheinfeld, but it should be done within a month. Does anybody know how to get in contact with Dr. Sheinfeld, so I can at least see if I can get in his schedule?

              Thanks in Advance.

              Dave
              Excellent news David ... The surgery may be just the fix you need. Anthony had a recurrence after chemo, and Einhorn recommended RPLND and NO chemo, unless he has another recurrence after surgery, then its off to Indiana for HDC.
              I realize you had RPLND already, but with the nodes not being too large, and your markers good, maybe surgery will take care of everything.

              Anthony had a residual mass that was 5.7x I forget exactly, that was removed along with all the nodes on his left side. His surgeon said all of it was cancer. His AFP was back up to 93 as they made the first incision. So far he is doing very well and has had no other chemo since his recurrence. (crossing fingers and praying it stays that way)

              I have always heard great things about sheinfeld too, he is supposed to be one of the best at RPLND.

              So, you have a few things in your favor with signs pointing to low cancer, studies showing that surgery can be "curative" , advice from Dr. Einhorn and surgery from Dr. Sheinfeld. Recurrence can rattle your psyche, without a doubt, but try if you can, to see the reasons you have to see a cure on the way, and don't let %'s mess with your mind too much.

              You're in good hands, and a lot of prayers are with you.

              I wish you peace of mind, heart, and soul

              Tammy

              Son Anthony DX 12/11/06
              L/O 12/20/06 Stage IIIA, 95% EC, 5% Yolk Sac
              4XEP 1/29-4/6/ 07
              AFP started increasing3 wks later
              Residual abdominal mass found on CT
              RPLND 6/8/07
              Cancer in pathology-
              80% mature teratoma, 20% Yolk Sac. --
              No adjuvent chemo and
              AFP normalised

              July 22, 2010 ---- 3 years all clear!

              Comment

              • #8
                Hi Dave: Sounds like you've had success making contact with Dr. Sheinfeld's office, and it's great that you've made it to this step. Let us know when your surgery date is scheduled and continued well-wishes from your Forum Family.
                Maria
                *Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
                *Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
                *CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillance

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                • #9
                  Well I certainly received a curve ball today. Went to see Sheinfeld about a repeat RPLND and his advice was to have 4 rounds of TIP chemo first. Dr. Einhorn's initila reaction was to have the RPLND first to see if this cured the problem.

                  I am seeing Einhorn nect week, just a bit confused this evening!!!!

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                  • #10
                    Im glad to hear that you are seeing Dr. Einhorn. I suspect that after your visit, you will feel solid on what is the best thing to do.
                    Shake that mans hand for me too!

                    Son Anthony DX 12/11/06
                    L/O 12/20/06 Stage IIIA, 95% EC, 5% Yolk Sac
                    4XEP 1/29-4/6/ 07
                    AFP started increasing3 wks later
                    Residual abdominal mass found on CT
                    RPLND 6/8/07
                    Cancer in pathology-
                    80% mature teratoma, 20% Yolk Sac. --
                    No adjuvent chemo and
                    AFP normalised

                    July 22, 2010 ---- 3 years all clear!

                    Comment

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