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Hey friends,
I wanted to give an update after my first two weeks of chemo - aka almost 1 complete cycle of BEP.
The first week is 5 days a week of IV's for 3-to-4 hours a day. It just made me tired, but no nausea. In fact, after completing my 5th day of IVs on a Friday, I was able to get up Saturday morning and go on the air at the radio station for two hours. So I felt pretty good about that. This past week was just one quick injection of Bleo, and this week will be the same thing--just the quick injection. Then I'll start cycle 2, with the full 5 days of IV's, on the 29th.
Here is what I'm noticing so far, and tell me if your experiences have been similar or not:
-Fatigue. I am generally tired all the time, especially after the dinner hour. This is somewhat constant, but really hasn't completely halted my life.
-Irritability. I found that early on I was a real crab, and this puzzled me, because that's not normally part of my personallity. I emailed Dr. Einhorn and he told me that irratability, mood, and energy swings would be a side-effect of the dexamethosone--which I'm being given for nausea.
-Ringing in my ears and diminished high-frequency hearing. I've read numerous reports of this being from cisplatin. Again, I wanted some reassurance that this wasn't going to be permanent. Dr. Einhorn told me that in the thousands of TC patients he's seen, he's never known anyone under 40 who's had permanent hearing loss with cisplatin.
-Things Taste Different. I understand this is pretty common.
-Sores in my mouth and tounge. I'm a little concerned about this, because this has developed in the last couple days, and I haven't had a chance to talk to the doctor yet. Needless to say, my tounge looks like something out of Swamp Thing. (sorry if that's TMI!).
-I had two days of intense diarrea and feeling very flu-like during the middle of this week that I can't explain. Since I'm not doing heavy chemo right now, they pulled me off the anti-nausea meds. But the diarrea was still a surprise. I did have a slight fever, but wasn't alarmed because it was only 99. The problem passeed and I have felt pretty good yesterday and today. Any explanations?
-Still haven't lost my hair.
So that's the update. Thanks for your feedback and support.
--Bri
I wanted to give an update after my first two weeks of chemo - aka almost 1 complete cycle of BEP.
The first week is 5 days a week of IV's for 3-to-4 hours a day. It just made me tired, but no nausea. In fact, after completing my 5th day of IVs on a Friday, I was able to get up Saturday morning and go on the air at the radio station for two hours. So I felt pretty good about that. This past week was just one quick injection of Bleo, and this week will be the same thing--just the quick injection. Then I'll start cycle 2, with the full 5 days of IV's, on the 29th.
Here is what I'm noticing so far, and tell me if your experiences have been similar or not:
-Fatigue. I am generally tired all the time, especially after the dinner hour. This is somewhat constant, but really hasn't completely halted my life.
-Irritability. I found that early on I was a real crab, and this puzzled me, because that's not normally part of my personallity. I emailed Dr. Einhorn and he told me that irratability, mood, and energy swings would be a side-effect of the dexamethosone--which I'm being given for nausea.
-Ringing in my ears and diminished high-frequency hearing. I've read numerous reports of this being from cisplatin. Again, I wanted some reassurance that this wasn't going to be permanent. Dr. Einhorn told me that in the thousands of TC patients he's seen, he's never known anyone under 40 who's had permanent hearing loss with cisplatin.
-Things Taste Different. I understand this is pretty common.
-Sores in my mouth and tounge. I'm a little concerned about this, because this has developed in the last couple days, and I haven't had a chance to talk to the doctor yet. Needless to say, my tounge looks like something out of Swamp Thing. (sorry if that's TMI!).
-I had two days of intense diarrea and feeling very flu-like during the middle of this week that I can't explain. Since I'm not doing heavy chemo right now, they pulled me off the anti-nausea meds. But the diarrea was still a surprise. I did have a slight fever, but wasn't alarmed because it was only 99. The problem passeed and I have felt pretty good yesterday and today. Any explanations?
-Still haven't lost my hair.
So that's the update. Thanks for your feedback and support.
--Bri
Each step gets you closer to the end...just like these races the guys here do. Gets pretty tiring, but there is an end. Take care, Sharon
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