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I was curious whether anyone has done the 2xEP post pc-rplnd? The 4xBEP hit me pretty hard so I am expecting a rough go on these next rounds but maybe it won't be as bad without the bleo. And I've had a couple of months to recover.
My pc-rplnd pathology, though mostly teratoma was up in the air for the first pathologist who looked at it but then my oncologist sent it to the most seasoned guy in the department at upenn and he concluded a minute focus of viable tumor. I didn't know that you could have anything but a 100% certain result on a pathology report but there it is. I sort of wonder whether maybe they found something they couldn't explain or whether my sample was just too mutilated after the rplnd and of course they have to err on the conservative side. I've been really impressed by the physicians and nurses at univ of penn and my onc said that if he had any doubts he would have sent the sample to Sloan or IU.
For anyone about to go into a pc-rplnd, I was quite fearful but it turned out not to be as bad as I expected. The most difficult part so far was going without food for 9 days or whatever it was. They say I had complications, with a particularly tricky bit of tumor that was stuck to the vena cava where they had to cut out more than they wanted so the procedure was about 5.5 hrs. But they brought in a vascular surgeon to patch that and honestly I don't feel any the worse. The NG tube gave me laringitis (sp?) for a few weeks. Also, it kinda feels like someone stuck a spoon in my guts and stirred things up down there because it definitely doesn't feel the same as it used to, just the way things move down there. But I am regular and aside from crampy pains especially at night, I'm doing ok. Pain wasn't much of an issue. The epidural worked like a charm and they gave me some diloded after that. but the diloded made me feel crazy so I have just been on ibuprofen since they took out the epidural, but there wasn't close to the pain I expected. Also couldn't get much rest in the hospital, but as soon as the bowels woke up, I went home and things improved fast! Still walk around kinda hunched like an old man but I had cabin fever and returned to the office 2 weeks after the procedure. My docs didn't recommend any of the non-fat diet but I did a low-fat diet for the first two weeks. Does anyone know whether Sloan recommends continued low-fat after that or just the nuts and popcorn thing? If anyone is about to do this, I am happy to share any of my experience up to this point.
PS I'm more of a reader than a poster on here especially when I'm feeling yuck but I have followed many experiences since my diag and besides my appreciation for other experiences, many have my thoughts and prayers even when it doesn't get typed here.
My pc-rplnd pathology, though mostly teratoma was up in the air for the first pathologist who looked at it but then my oncologist sent it to the most seasoned guy in the department at upenn and he concluded a minute focus of viable tumor. I didn't know that you could have anything but a 100% certain result on a pathology report but there it is. I sort of wonder whether maybe they found something they couldn't explain or whether my sample was just too mutilated after the rplnd and of course they have to err on the conservative side. I've been really impressed by the physicians and nurses at univ of penn and my onc said that if he had any doubts he would have sent the sample to Sloan or IU.
For anyone about to go into a pc-rplnd, I was quite fearful but it turned out not to be as bad as I expected. The most difficult part so far was going without food for 9 days or whatever it was. They say I had complications, with a particularly tricky bit of tumor that was stuck to the vena cava where they had to cut out more than they wanted so the procedure was about 5.5 hrs. But they brought in a vascular surgeon to patch that and honestly I don't feel any the worse. The NG tube gave me laringitis (sp?) for a few weeks. Also, it kinda feels like someone stuck a spoon in my guts and stirred things up down there because it definitely doesn't feel the same as it used to, just the way things move down there. But I am regular and aside from crampy pains especially at night, I'm doing ok. Pain wasn't much of an issue. The epidural worked like a charm and they gave me some diloded after that. but the diloded made me feel crazy so I have just been on ibuprofen since they took out the epidural, but there wasn't close to the pain I expected. Also couldn't get much rest in the hospital, but as soon as the bowels woke up, I went home and things improved fast! Still walk around kinda hunched like an old man but I had cabin fever and returned to the office 2 weeks after the procedure. My docs didn't recommend any of the non-fat diet but I did a low-fat diet for the first two weeks. Does anyone know whether Sloan recommends continued low-fat after that or just the nuts and popcorn thing? If anyone is about to do this, I am happy to share any of my experience up to this point.
PS I'm more of a reader than a poster on here especially when I'm feeling yuck but I have followed many experiences since my diag and besides my appreciation for other experiences, many have my thoughts and prayers even when it doesn't get typed here.
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