No announcement yet.

I'm back, need help

  • Filter
  • Time
  • Show
Clear All
new posts

  • I'm back, need help

    Hi everybody. I have been away from forum for a while and have been in surveillance after dx in 8/05 and left orchiectomy then. I was diagnosed with Sertoli cell tumor and oncologist said no further treatment needed, but my AFP has been a little high since before surgery. It had gone up to 16.5 at one point, but has been kind of up and down. I was sent to liver specialist and my liver checked out fine so Dr. could not tell why my AFP was up a little, but not way up.
    Well, I just did my second PET scan this week. My first was in 10/05 and it was normal. This one, according to the nurse showed something in one of the right abdominal lymph nodes. I have been having some pain in my right side lately also. This caught me by surprise since I had a Sertoli cell tumor. I dont know what is going on and I am not sure my doc does either. The nurse said that the Dr. is talking about removing the lymph node and then possible Chemo. Would this be a RPLND. Is there anything else I should be checking at this point. I am thinking about talking to IU about this. I am in St. Louis and Barnes is the hospital. They are good, but I dont know how much experience they have with this.
    I thought I had lucked out with this and just getting the IO, but it looks like I may be looking at more now. Anybody have any advice. Thanks, this is a great forum.

  • #2
    It would absolutely be worth a consultation with IU.

    We're all wishing you good luck and good health. Let us know as you find out more.
    Scott, [email protected]
    right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

    Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!


    • #3
      Definitely go for the consult. Although AFP can certainly fluctuate, get checked out by an expert.

      You also said
      I dont know what is going on and I am not sure my doc does either.
      This usually means it's time to get another doctor.

      I wish you all the best.

      Right I/O 4/22/1988
      RPLND 6/20/1988
      Left I/O 9/17/2003

      Tho' much is taken, much abides; and though we are not now that strength which in old days moved earth and heaven; that which we are, we are; one equal temper of heroic hearts, made weak by time and fate, but strong in will; to strive, to seek, to find, and not to yield.


      • #4

        thanks so much. I had some more blood work today and will hopefully see next week what my doctor recommends. I feel that I will look at IU for a consult since my situation seems to be unusual even for TC which is rare anyway.


        • #5
          Never ever heard before of a left-to-right cross-over; though right-to-left has been observed before on occasion.

          If indeed, congratulations to a first!


          • #6

            mine seems to be unusual in all ways. Nothing seems to be going normally. I guess i am just a rare bird.